Parkinson's Pages

There are many links on the Internet to page that provide information on Parkinson's. These links, just a few, might be a source of information.

Art Hirsch's website Art's site has many useful links to parkinson's information, including such things as patients sites, advocacy, hospitals, medications, physical therapy and others.

Curing Parkinson's Disease in Our Lifetime: Part 1 Central to curing Parkinson's disease (PD) is finding its cause. And central to finding its cause is defining it - is PD one disease? Or several? Is there one cause? Or several?

Curing Parkinson’s Disease in Our Lifetime Part 2 Parkinson’s disease (PD) is diagnosed if a patient has two or more cardinal symptoms, one of which is bradykinesia or resting tremor.

Dr. Coop NewsLetter on Parkinson's Dr. C. Everett Coop's newsletter includes information explaining parkinson's, what its symptoms and causes are, how it's treated, surgery information, diet information and other subjects.

E-Move WE MOVE introduces E-MOVE, a research news service that alerts busy professionals in the movement disorders community to the best new work being published. E-MOVE surveys the current literature and delivers to your desktop brief, timely synopses of developments in movement disorders.

Freezing and Parkinson's Disease Dr. David Cram explores this complicated symptom with both his medical knowledge as a Doctor and his personal experiences as a Parkinson's Disease patient. The article includes treatment options and ideas to help break freezes.

Hoehn and Yahr staging of PD The Hoehn and Yahr Staging of Parkinson's Disease is one way of assessing the progress of the disease in a person.

"James", a site about Parkinson's Disease This web site is about with Parkinson's Disease; what it is, what you can do to fight its effects; and how the Internet can be used in the battle against PD. A major feature is a searchable archive of the PIEN ListServ messages.

Janet Paterson's website Janet's page is a compilation of information, including information about The Parkinson's Information Exchange Network (PIEN), Janet's own words, and the messages or indexes of messages posted on the PIEN ListServ.

My Parkinson's Disease Get the Story Behind the Story from Dr. David Cram. Dr. Cram is a retired doctor and medical clinician as well as an author and Parkinson's Patient. This is his completed 10 part series regarding his experiences with the effects of Parkinson's. >>

National Institute of Neurological Disorders and Stroke Parkinson's Disease: Hope Through Research - This page consists of a pamphlet written and published by the National Institute of Neurological Disorders and Stroke (NINDS), the United States' leading supporter of research on disorders of the brain and nervous system, including Parkinson's disease. There is a lot of useful information available via this page.

National Parkinson Foundation The National Parkinson Foundation is a world-wide organizations dedicated to finding the cause and cure for Parkinson's disease and related neurodegenerative disorders through research. Along with general information, there are a number of tests (parkinson, sleep, anxiety, tremors, and depression) intended to raise awareness.

Northwest Parkinson’s Foundation (NWPF) The Northwest Parkinson’s Foundation (NWPF) is a Washington state non-profit charity, established to make the Northwest a leading world center of movement disorders knowledge and treatment.

Parkinson's Challenge Sue Thomas and Dr Doug MacMahon discuss the skills needed by nurses to enable them to identify and address the needs of patients with Parkinson's disease.

Parkinson's Disease Resource Center The Parkinson's Disease Resource Center is a subset of the HealingWell.com community. There are many useful links, articles, news, and specific links to a Parkinson's Disease Community that includes an interactive message board, a chat room, and other resources.

Parkinson's Foundations This pages lists an extensive list of Parkinson's Foundations, including addresses, websites, and an abstract of each. This page is part of Art Hirsch's comprehensive site.

Parkinson's Information Exchange Network MailList When I want to find out what I'm missing on the PIEN I go to the MailList page. One can just scroll through all the topics and pick out the items to read. Scroll down until the MailList appears.

Parkinson's Training for Caregivers The Parkinson's Training for Caregivers project is a free online course developed to train caregivers in caring for those with Parkinson's Disease in long-term care settings.

PD INDEX: A Directory of Parkinson's Disease Information on the Internet PD Index provides a directory of information about Parkinson's disease (PD) that is available on the internet. The directory also includes references to information that is not specific to PD but is still likely to be useful to persons for whom PD is a concern.

The American Parkinson Disease Association Young Parkinson's Information & Referral Center has created PDKIDS, an email discussion list for children who are living in a family affected by Parkinson's Disease. Parkinson's disease is a family affair. Even young children are affected when someone they love is not functioning in their "normal" ways. PDKIDS is a forum for children (through teenage years) who live with or love someone with Parkinson's disease. Through this Internet program, PDKIDS offers children a place to get to know others like themselves who are in similar circumstances and have similar concerns. By joining PDKIDS, children can "talk" to each other in confidence (to the extent that an Internet list will allow) and discuss anything they wish about how PD affects them. This is a free program for any child 18 years or younger. How it works: To join, kids simply send an email to PD Kids One will then receive a welcome message with instructions about how to use PDKIDS. When one posts an email message to PDKIDS, the personal email addresses will be automatically deleted from email headers posted to the list to ensure confidentiality. When one replies to an email, the response will go directly to the PDKIDS list, not to an individual member. There will be a "light adult presence" on the list, serving to provide technical guidance and to ensure that the conversation remains constructive. This "presence" will be provided by Susan Reese, MA, RN, LCSW, Coordinator of the APDA Young Parkinson's Information & Referral Center and by Simon Coles, co-owner of the list, and himself an adult PD kid. For more information call: APDA Young-Onset Center at 1/800-223-9776 To reach the list owners, send an email to owner-pdkids@lyris.parkinsons.org.uk

Reviews Of Drugs Used To Treat Parkinson's Disease Alan Lukazewski, (RPh, CDE, FASCP) explains many of the drugs and the some of the complexities of treating Parkinson's Disease.

Sexuality and Gender Issues in PD This is a paper discussing various issues male and female Parkinson's patients have.

Stages of Parkinson's A frequently asked question of Parkinson patients is: "What Stage am I in?" The Hoehn and Yahr Scale rates one aspect of your disease: mobility. It does not rate other aspects of Parkinson disease such as: Anxiety and Depression (Anxiety Questionnaire | Depression Questionnaire) Dyskinesias Intellectual Decline and Memory Loss (read about Dementia) Unusual Behavior Swallowing Difficulty (read the on line publication "Speech and Swallowing") Sleep Difficulty (Insomnia Questionnaire) Bladder Difficulty (read about Bladder Difficulty)

The Center for Neurologic Study - Parkinson's Articles This is a series of articles about parkinson's including selecting drug therapies, exercises, and quality of life issues.

The Official PWP Dumpster Gang Hideout The Dumpster Gang is that group of people with parkinson's (PWP) who support one another through the ups and downs of parkinson's. They chase away the fears and are there to lend a helping hand.

The Parkinsn Archive Treasures This is an alternative to the "The Parkinsn Current Topics Archive Treasures" link below.

The Parkinsn Current Topics Archive Treasures The articles and studies contained on this site represent a cross section of topics discussed and posted on the Parkinsn Email list over the past years.

The "Parkinson's Disease"Directory This site hosts a list or useful Parkinson's information including discussions about exercise, CareGivers, relating to others, caring for CareGivers, sexuality, sleep problems, the parkinson's patient at home and others.

Understanding Proteins, Understanding Parkinson Disease (PD) PD results from a loss of cells in the substantia nigra. The substantia nigra is part of the brainstem. The loss of cells is confined to pigmented, dopamine-containing cells. These cells, unlike other, near-by dopamine cells lack a specific protein--calmodulin. Calmodulin is involved in calcium-regulation. The role of calmodulin, and the vulnerability of dopamine cells lacking-calmodulin to die prematurely is, at this time, unknown.